Patient Stories
Some experienced kidney failure in their 20s… others in their 70s. All of them experienced a gradual decline in kidney functioning over many years, just like one or more family members before them.
Learn how these families discovered that their family history of chronic kidney disease was the result of MUC1 or UMOD and how they are faring.
Two Teachers Now United for Life, by Elizabeth Wulfhorst
“From then, my primary care doctor said, obviously, there’s something genetic.. we didn’t know what it was called. We didn’t know what it was because there just wasn’t enough information on it.”