Genetic Testing

The most definitive test for ADTKD is genetic testing.

Kidney imaging and kidney biopsies do not help diagnose ADTKD.

Suspect ADTKD ?

If you have…:

🚩 A parent with chronic kidney disease

🚩 Slow decline in kidney functioning over many years

🚩 No blood and or protein in the urine

…you may want to consider genetic testing for ADTKD.

Please fill out the form below, and we, as your patient advocacy organization, will forward your inquiry to Wake Forest University School of Medicine, who can help you evaluate your situation and let you know whether genetic testing for ADTKD may be right for you.

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Rare Kidney Disease Foundation

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Rare Kidney Disease Foundation is a 501(c)(3) non-profit organization. Federal tax ID: 82-4421861