Events
ASN KIDNEY WEEK 2024
This is an in-person event. Location: San Diego, CA
American Society of Nephrology (ASN)
Networking reception with Dr. Anna Greka
This event is by invitation only. Contact us if interested
AAKP Annual Global Summit 2024
Rare Kidney Disease Foundation’s “BREAKTHROUGH: HOPE NOW FOR RARE KIDNEY DISEASE”
Presentation featuring Dr. Anna Greka, The Broad Institute of MIT and Harvard, Paul Conway, AAKP Policy Chair, Richard Nelson and Joe Morden, Rare Kidney Disease Foundation
This is a virtual event
Tuesday, July 16 2024, 1.30pm - 2.30pm (EST)
Patient Day at Wake Forest
AGENDA
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9:00am – 10:00am |
Registration Check-In |
Wake Forest Biotech Place |
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10:00am – 12:00pm |
Morning Keynotes |
Wake Forest Biotech Place |
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12:00pm – 1:00pm |
Lunch |
Wake Forest Biotech Place |
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1:00pm – 4:00pm |
Afternoon Breakout Sessions |
Wake Forest Biotech Place |
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5:00pm – 6:00pm |
Reception host by the Rare Kidney Disease Foundation |
TBA |
*Subject to updates and changes
TRAVEL & ACCOMODATIONS
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Meeting Location: |
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Wake Forest Biotech Place 575 Patterson Ave. Winston-Salem, NC 27101 |
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Nearest Hotels: |
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Kimpton Cardinal Hotel ★★★★ 51 4th St, Winston Salem, North Carolina, 27101 (0.23 miles from Biotech Place) Hotel Indigo - Winston-Salem Downtown ★★★ 104 W 4th St, Winston Salem, North Carolina, 27101 (0.32 miles from Biotech Place) Hampton Inn & Suites Winston-Salem Downtown ★★ 235 North Cherry Street, Winston Salem, North Carolina, 27101 (0.43 miles from Biotech Place) |
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Nearest Airports: |
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The nearest airport to Winston-Salem, NC is Greensboro/High Point (GSO) Airport which is 17.3 miles away. Other nearby airports include Charlotte (CLT) (72.8 miles), and Raleigh/Durham (RDU) (83.3 miles). |
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Things to-do: |
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Centrally located in North Carolina, Winston-Salem will reward the curious traveler in you. It’s an easy drive from the coast and an hour and a half from the majestic Blue Ridge Mountains. We offer more than 260 years of hands-on history. Our downtown has a growing culinary scene with over 100 restaurants and was ranked in the top 10 by Forbes. Click here for more information |
Annual RKDF Patient Roundtable 2023
The Rare Kidney Disease Foundation (RKDF) extends a resoundingly warm invitation to all ADTKD patients and their families to its 2023 Virtual Patient Roundtable, to be held Sunday, May 21, 2023 at 2pm EST.
The roundtable will include participation from Dr. Bleyer’s team at Wake Forest, as they discuss the latest developments in finding a treatment for ADTKD. The registration link is below:
https://us02web.zoom.us/meeting/register/tZcldO6hrDkvGNyMUWJyp6iSATbkF0XbNT0f#/registration
3rd Annual ADTKD International Summit
From October 7-8th 2022, researchers, patients, and caregivers from around the world will join together again in a virtual gathering committed to finding a treatment and cure for ADTKD.
The event will begin at 10am EST on both days, and you may register your attendance in advance using the link below:
Replays are available to view below:
DAY 1 (SCIENTIFIC PROGRAM)
https://drive.google.com/file/d/1kNH5JwqpGjqctJPBBmD6r_vososAOxoz/view?usp=share_link
DAY 2 (PATIENT DAY):
https://drive.google.com/file/d/1-5_ofU5HQAanwpuLSe_rAM9inIcuoV49/view?usp=share_link
Patient Roundtable - September 18th 2022
The annual RKDF Patient Roundtable will take place virtually on September 18th 2022 from 5-6:30pm EST.
The roundtable will include participation from members of the Broad Institute as they discuss the latest developments in finding a treatment for ADTKD. The registration link is below:
A replay of this event will be posted when it becomes available.
2nd Annual ADTKD International Summit
On November 19-20, 2021, researchers, patients, and caregivers from around the world joined together in a virtual gathering committed to finding a treatment and cure for ADTKD. Recordings of the summit are now available here:
Scientific Program (Day 1)
Patient Program (Day 2)