Rare Kidney Disease Foundation
Names Deputy Director

Rare Kidney Disease Foundation Names Deputy Director

Rare Kidney Disease Foundation
Published on: 22/08/2025

Lisa excels at translating RKDF’s mission into action, from re-establishing and leading the Ambassador Program, to taking on the role of Treasurer, to overseeing RKDF’s website upgrade,” reports Richard Nelson, Chair and Co-Founder of the RKDF.

Press Releases
Living Well With ADTKD, by Evan Leong

Living Well With ADTKD, by Evan Leong

Rare Kidney Disease Foundation
Published on: 16/07/2025

Ever since I can remember, kidney disease has been a normal topic in our family. My grandfather got his kidney transplant around the time I was born & my mother got hers over five years ago. It was always in the back of my mind that I could have it.

Patient Stories
My Experience with ADTKD-UMOD and as a Two-Time Kidney Transplant Recipient, by Kathy Stankus

My Experience with ADTKD-UMOD and as a Two-Time Kidney Transplant Recipient, by Kathy Stankus

Rare Kidney Disease Foundation
Published on: 28/05/2025

My experience with my genetic kidney disease, Autosomal Dominant Tubulointerstitial Kidney Disease (ADTKD) - Uromodulin Kidney Disease (UMOD), began when my mother became ill in her sixties (I was in my twenties) and needed to prepare for dialysis.

Patient Stories

Position Statement on Proposed Cuts at NIH

Position Statement on Proposed Cuts at NIH

Rare Kidney Disease Foundation
Published on: 16/03/2025

Like many of you, we at RKDF are deeply concerned about the proposed cuts to NIH.

News